There are people who, in the face of hardship, exemplify courage and resilience in a world full of obstacles. Meet the young 28-year-old Nissha Muniandy, a woman of courage who faces the tremendous obstacles of epilepsy and dystonia. She is a part-time secondary school teacher and a writer. The tale she tells is a tribute to the strength of the human spirit and endurance, rather than simply one of survival.
Nissha Muniandy had suffered from dystonia, a very rare condition of involuntary muscle contraction, since she was 6 years old.She said this following numerous visits to the doctor and nearly 10 years of waiting for the procedure to be completed. “I had followed up with doctors multiple times to find a solution as the dystonia started to spread all over my hands and legs as well.” At seventeen, she received a dystonia diagnosis.
The public’s attention was drawn to the very young Nissha Muniandy’s dystonia and epilepsy a year ago, when it was making waves in our social media feed. She turned to social media last year for assistance in finishing her surgery for epilepsy and dystonia. She was able to receive a pacemaker with a brand-new battery that can last up to 15 years after the RM100,000.
She shared on social media a few months ago that the operation was finished. Nissha is following the procedure, but we haven’t heard anything additional from her after that. In a recent interview, which she recently announced in an interview arranged by Raaga FM, she wrote a book named ‘The Dancing Body’ A Celebration of Movement and Joy.
Varnam Malaysia scheduled an interview with Nissha to understand more about her post-surgery health condition and to congratulate her on the release of her book.
Nissha’s life threatening condition after the surgery.
It was astonishing when one discovered that Nissha’s body was operating on electrical energy as it is traditional for only robots to run on battery power and voltage.
“My body is currently using three watts of electricity, and an electron is implanted in my brain to cease my involuntary movements. I have 42 stitches altogether across my head and chest on my left side; as a result, I find it quite uncomfortable to sleep on that side. Prior to the procedure, I received ten shots of Botox injections, which use a toxin to temporarily impair muscular movement. Nissha said with a louder chuckle, “My family and friends are afraid to touch me because my body is running under current.”
Doctors eventually suggested implanting a battery on her chest and implanting electrons into her brain because the medication was not improving her dystonia. “The surgeon informed me that they were unable to guarantee a positive outcome from this surgery; failure to do the procedure would entail failure. But I never lose confidence since I have already overcome a lot in my life and I decided to give it a go,” she said in the interview.
She disclosed that one of the negative effects of the dystonia surgery was that it had caused epilepsy which defined as seizures the day after she had charged her batteries. We asked Nissha to elaborate on the post-surgery routine that she adheres to, and she said, “I will hold the device against my chest for the full two and a half hours to finish charging. I am unable to watch television, using laptop or even a mobile device as result of the electric waves that will cause nausea and headaches, “she added.
In addition, Nissha told us that she enjoys painting and experimenting with new dishes in her spare time. as it is recommended that she refrain from using phones or other electrical devices because doing so could seriously impair her health.
Nissha a writer and teacher, fights to enable dystonia define her.
In her book “The Dancing Body,” Nisha described how she overcome dystonia and epilepsy. I had the idea to give my poetry books offered for free to any person who donate funds to help with her surgery. Nevertheless, that never happened as she was inexperienced on how to carry out the procedure. She grinned and continued, “I feel so fortunate that the whole Malaysian community helped with my surgery and showered me with their unconditional love.”
“I owe a debt of gratitude for the numerous acts of kindness that I have received as well as for writing this book. This book is a manifestation of my love and happiness for a person whose illness is incurable. “As you are, you are enough” serves as the book’s central thesis.
I never would have guessed that I would end up as a writer. In 2017, I started writing while I was an undergraduate student at the University of Malaya. A local publisher named Kanyin volunteered support in getting the book published on their website.
After placing their preorder, customers will receive their copies by the end of April. The book is currently available for preorder. The official release of her book is scheduled for the end of this month.
Those who would like to pre-order her book can do so by clicking this link.
‘You are beautiful, you are unique and you should come,’ by Nissha.
This is a Varnam Exclusive Story! Reproduction requires a credit to Varnam Malaysia.
Follow us on Instagram, Facebook or Telegram for more updates and breaking news.
